Okie Dokie.....

elf925

The Pink Orchid
#1
Since you are all crazy helpful and open, Id like your thoughts.

I have a quandary of sorts. I generally eat pretty healthy and limit (like to the point of none 98% of the time) sugar and white carbs. I do eat ancient grain breads etc... If Im given the choice I will pick the good for you one. I am generally active but get side lined a lot. (will explain that one in a bit) A lot of lifestyle diets make sense in my head and while I want to live that way, my body just doesn't seem to like it. I think Im having a brain body barrier meaning my brain says X but my body is like haha you're funny no!

I have lupus and/or fibromyalgia depending on the rheumatology office I see at the moment. Bottom line is I deal with pain and horrible fatigue all the time. When I have a flare, I am exhausted to the point of falling asleep standing up at least twice a day. I also deal with a number of digestive issues.

Here's the thing, I actually feel better about twenty pounds heavier and eating not as healthy. Still not horrible but not as "granola." My brain tells me no, but at the same time, I know I feel better eating not so structured. I dont know if its because I need more calories or different calories but I have trouble with the thought of gaining and being heavier. I find I have less flares and fatigue battles and have more energy eating more carbs and a little bit, and I mean a little, of *gasp* refined sugars and some fats. Even though I feel better I question if I really am better.

Anyone else actually find they operate better with extra pounds and a little bit less healthy of a diet?
 
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jcent

BTD Crown Jewel
#4
I say trust your body and do what it is telling you. I eat the way I feel best, and it just happens to be low carb/no sugar. They don't make me feel good even though I LOVE the taste. But if I ever have a day or a week where it jut isn't working for me, I add in what I need to to have energy and feel good. We are always gluten free, but there have been times when I have eaten corn pasta daily for a week, and it has made all the difference in how I feel. Maybe now you DO need extra stuff...maybe in 6 months you won't and you will go back to "cleaner" eating for a bit. I do not think 20 extra pounds is always bad. BMI and things like that are not true indictators of health, and some people look better and feel better with some extra weight. I am one of them. I am my best/healthiest looking btween 145 and 165. 130, while still technically in a healthy range for my height, is not healthy for ME. And 165, while at the top of my healthy range, actually suits me just fine.
 
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#5
I would say you aren't getting enough fat. Many people think that a "low fat" diet means healthy. It's actually quite the opposite. your body does better when you eat a diet high in healthy fats, like avocado, red meat, chicken with the skin on it. I don't think refined sugar can be good for anyone. Have you been doing the no sugar/zero carb thing for long? It took me 1-2 months to really get used to not eating sugar and carbs. During that time, I felt irritable, weak, always tired. Sometimes your body just needs time to adjust to a new way of eating. Also, exercise is super important. Just move, do any kind of movement within your limitations. It really helps!
 
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elf925

The Pink Orchid
#6
Wishingandhoping- I have actually been living this way for 8 yrs now so no, its not just a "hump" I need to get over. I agree about the fats you mention though and do have healthy fats in my diet. I am also always anemic so me and cow have always been good friends!

As far as exercise, up until a month or so ago I was on my feet 9ish hrs a day. I hardly live a immobile lifestyle. When I can, I do yoga as its less stress on my joints than other forms of exercise. When I say pain, I mean sometimes I drop to the floor as the spasms are so intense. Being dropped by pain is no fun. At least twice a week I have trouble just walking.

Im not trying to be defensive if anything came off that way and I appreciate all comments. Im just trying to give more background!
 
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#7
Good to know the background! You don't sound defensive at all!


I would say have you tried acupuncture? I have a friend who has arthritis and Crohns disease, and she says acupuncture has helped immensely with both. I would advise you to go see a natropathic doctor. They tend to try and treat the whole body and not just the symptoms.
 
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#8
Hey elf! I would listen to what your body is telling you about when it functions best. The human body has a remarkable way of letting you know when something isn't quite right and if you feel that you operate best a few lbs heavier and on a not-so-strict diet then I am all for it. Like others have said, your 'BMI' or weight (to a certain extent) isn't a particularly great way to determine health. I determine health by functionality and quality of life. If you feel that your quality of life is greater and overall health is better when you eat a certain way I would do it. (I'm obviously not talking about 'I feel much better when I have 3 Milky Way's in a day' but I'm sure that's not what you were referring to - I just wanted to clarify for everyone else).

I would say as long as you still maintain a healthy lifestyle (not over eating/over indulging), then I say you should try it and see how you feel. When I diet too extreme or cut out/limit certain food groups is when I have troubles with energy/body pains and other health concerns. I'd say balance and moderation are key and one should try to maintain optimum functionality.

I'm sorry to hear about your different medical conditions. Lupus and Fibromyalgia are often hard to distinguish and you're right - often unfortunately it just depends on who you see. I'm hoping you find relief as soon as possible and that your potential change in diet brings you some relief.
 

elf925

The Pink Orchid
#10
e.taylor said:
have they determined why you are always anemic? that is something that really should be looked at.
There's no "real" reason, its common in people with lupus/fibromyalgia and my entire family is anemic.
 
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e.taylor

The Black Orlov
#11
meh, there's generally a reason. it could be hereditary, but even so it can be biochemically different for different people. I would want to know where the breakdown is happening, personally.

is it iron deficiency, vitamin deficiency, have your ferritin levels been looked at, is it hormonal etc.

There's just so many reasons why anemia can happen that I don't like to see it brushed off as just "anemia." A person who needs folate (possibly methylated if there's a genetic issue) isn't going to be helped by supplementing iron, you know?
 
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elf925

The Pink Orchid
#12
I know what you mean but sadly, I've learned to pick my battles with regard to health care. Dr.s usually will only treat or deal with one thing at a time and I've got more going on that impacts me more severely than being anemic. I can't even remember all the Drs I've seen just the past year. They dont even see it as a slight issue. They just throw me a piece of paper that says take slow fe iron and they move on. There's no point in finding another dr as they are all like that. I pretty much have to treat myself. I decided I couldn't take it anymore and went in with a huge list of symptoms. Symptoms like severe hair loss, blue nails/fingers, its 90 out and Im still cold, cognitive issues, severe pain, joint issues, sometimes I can be holding things and they will just drop out of my hand, unbelievable fatigue, skin lesions etc... Nine times out of ten Im told its all in my head and told to exercise and given an RX for an antidepressant. The other one time, the dr looks at me and says ok, one thing at a time.


Its so frustrating! I really just want to scream sometimes!
 

jcent

BTD Crown Jewel
#13
elf, have you ever seen a nauturopath? Not in place of a Dr or you specialists, but in conjunction with? I really do feel one may be able to help you. They tend not to dismiss things, in my experience.

And a few of the naturopaths I have been to are GPs as well, but they made the decision to take a differnt route with regards to healing.
 
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